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Objective: To investigate parent’s opinions about enrolling their premature b aby into several research studies in the few days after birth. Methodology: A qu estionnaire was given to parents of premature babies in the neonatal intensive c are unit who had been invited to join several studies (two to seven). Results: A ll 50 mothers and 42 of 48 fathers completed the questionnaire independently; 28 %had been asked to join two studies, 32%three, 24%four, 14%five, and 2%six studies. There were 61 babies with mean (SD) gestational age 26.9 (1.6) weeks an d birth weight 877 (249) g. Nearly three quarters (71%) of the parents thought it was very good for their baby to be in a hospital that was carrying out a lot of research. Most (93%)-thought that their baby would get the same or better c are in a study. Only 15%thought their baby was too small for research studies. Almost all (98%) wanted to be involved in the decision about their baby joining a study. Only 22%were worried about the number of studies; 10%would not enrol their baby in any studies, but 74%were willing for their baby to join two or m ore studies, and 10%would enrol in all the studies. Most (94%)-believed that their baby’s participation would improve care of future babies. Conclusions: Mo st of these parents were willing to join several studies. The majority were not worried about their baby participating in the studies. The profession needs to b e aware that parents are supportive of neonatal research and participation in mu ltiple studies.
Objective: To investigate parent’s opinion about the preterm babies in the neonatal intensive c are unit who had been invited to join several studies Two to seven. Results: A ll 50 mothers and 42 of 48 fathers completed the questionnaire independently; 28% had been asked to join two studies, 32% three, 24% four, 14% five, and 2% six studies. There were 61 babies with mean (gestational age 26.9 (1.6) weeks an d birth weight 877 (249) g. Nearly three quarters (71%) of the parents thought it was very good for their baby to be in a hospital that Most (93%) - thought that their baby would get the same or better c are in a study. Only 15% thought their baby was too small for research studies. Almost all (98%) wanted to be involved in the decision about their baby joining a study. Only 22% were worried about the numbe 10% would not enrol their baby in any studies, but 74% were willing for their baby to join two or m ore studies, and 10% would enrol in all the studies. Most (94%) - believed that their the majority were not worried about their baby participating in the studies. The professions to be aware that parents are supportive of neonatal research and participation in mu ltiple studies.