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目的 :了解肾病综合征患儿 (NS)的行为、家庭环境及其父母的生活质量 ,为NS患儿及其父母的心理干预治疗提供理论依据。方法 :分别采用Achenbach’s儿童行为量表 (CBCL)、家庭环境量表中文版 (FES -CV)及生活质量综合评定问卷 (GQOLI -74)调查男性NS患儿及其父母 3 2例 ,对照组为正常男孩及其父母 45例。结果 :NS组男孩行为问题检出率为 3 1% ,高于对照组 2 0 % ,但无统计学意义 ( χ2 =1 3 ,P >0 0 5 ) ;男孩在体诉 (t =3 0 2 )、社交退缩 (t=2 13 )及攻击性 (t =3 1) 3个行为因子上得分与对照组差异显著 (P <0 0 5～ 0 0 1)。家庭环境在娱乐性上与对照组有显著差异 (P <0 0 5 )。而父母生活质量则除住房、社区服务、生活环境、自尊、社会支持、人际交往能力及婚姻与家庭外 ,其余因子均与对照组存在显著差异 (P <0 0 1)。结论 :NS患儿的某些行为及其父母的生活质量有改变 ,应引起医护人员的重视 ,适当的心理干预治疗是必要的。
Objective: To understand the behavior of children with nephrotic syndrome (NS), family environment and the quality of life of their parents, provide a theoretical basis for the psychological intervention of NS children and their parents. Methods: Achenbach’s Children’s Behavior Scale (CBCL), Family Environment Scale Chinese Version (FES-CV) and Quality of Life Quality Assessment Questionnaire (GQOLI-74) were used to investigate 32 male NS children and their parents respectively. The control group was 45 normal boys and their parents. Results: The prevalence of boy behavior problems in NS group was 31%, which was higher than that in control group (20%), but not statistically significant (χ2 = 13, P> 0.05) 2), social withdrawal (t = 2 13) and aggression (t = 3 1). There was significant difference between the three behavioral factors (P <0.05-0.01) and the control group. Family environment was entertaining compared with the control group (P <0 05). The quality of life of parents except for housing, community service, living environment, self-esteem, social support, interpersonal skills and marriage and family, the remaining factors were significantly different from the control group (P <0.01). Conclusion: Some behaviors of children with NS and their parents’ quality of life have changed, which should be paid more attention to by medical staffs. Appropriate psychological treatment is necessary.