The Danish HNPCC-system: Biomedical Informatics as Support to Individual Healthcare in Hereditary Co

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  The Danish HNPCC-register, being a part of the National Public Healthcare System, is a publically financed national database.In the register is gatheredepidemiological and genomic data of all families with Hereditary Coloreetal Cancer (HNPCC-families) in order to improve prognosis by initiating and establishing screening and identifying family members at risk.All over the country diagnostic data are generated in different departments and laboratories and these data have been collected over several decades in the register.Until recently paper-based reports were sent to the register and typed into the database.
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