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基因信息引起了深刻的社会变革,成为现代社会最重要的信息资源之一。基因信息权利保护问题,关涉个人、家庭、经济组织以及国家等多个主体在私生活、市场以及国家战略等多个维度的利益。既有的研究往往将基因信息与作为其物质载体的基因、组织样本以及其他类型的个人信息混为一谈,忽略了基因信息的特殊性,或者单纯地进行伦理诘问与原则考察。这并不足以解决基因信息引发的社会问题和案件争议。本文建立在权利本位的视角上,沿着事实一理论一制度的研究路径,回应了为何保
Gene information has caused profound social changes and become one of the most important information resources in modern society. The issue of the protection of genetic information rights concerns the interests of individuals, families, economic organizations and countries in multiple dimensions such as private life, market and national strategy. Existing studies often confuse genetic information with genes, tissue samples and other types of personal information that serve as their material carriers, ignoring the particularity of genetic information or simply conducting ethical questions and principles. This is not enough to solve the social problems caused by genetic information and case disputes. This article is based on the right-oriented perspective, along the fact that the theory of a system of research path, in response to why Paul