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[目的]探讨延边地区朝鲜族永久性结肠造口患者生存质量现状.[方法]采用欧洲癌症研究与治疗组织生活质量核心量表(EORTC QQL-C30)及大肠癌专用生活质量量表(EORTC QLQ-CR38)对87名延边地区朝鲜族永久性造口3个月以上患者进行问卷调查.[结果]EORTC QLQ-C30调查结果显示,患者总体生存质量得分为57.68±19.64,其中角色功能、情绪功能、社会功能得分间差异均有统计学意义(P<0.05),单项量表中便秘、腹泻和经济困难得分均明显高于常模(P<0.05);EORTC QLQ-CR38调查结果显示,功能量表中性功能及性乐趣得分较低,症状量表中结果显示男性性问题和造口相关症状得分最高.[结论]延边地区朝鲜族永久性结肠造口患者生存质量受各因素影响.
[Objective] To explore the quality of life of patients with Korean permanent colostomy in Yanbian area. [Methods] The EORTC QQL-C30 and EORTC QLQ -CR38) conducted a questionnaire survey among 87 Korean patients in Yanbian area for more than 3 months. [Results] The results of EORTC QLQ-C30 showed that the overall quality of life score of patients was 57.68 ± 19.64, in which the role and emotion (P <0.05). Constipation, diarrhea and financial difficulties in the individual scales were significantly higher than those in the norm (P <0.05). The results of EORTC QLQ-CR38 showed that the scores of functional The scores of sexual function and sexual pleasure in the questionnaire were lower, and the results in the symptom scale showed that male sex problems and the symptoms related to stoma were the highest. [Conclusion] The quality of life of Korean patients with permanent colostomy in Yanbian area is influenced by various factors.