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目的研究安徽省农村地区艾滋病病毒感染者/病人(PLWHA)的生活质量,为控制艾滋病流行提供依据。方法采用整群抽样方法,在安徽省阜阳市某县抽取2个艾滋病流行重点村,招募有6~18岁孩子的成年PL-WHA,采用半结构式问卷和面对面访谈方式进行调查。结果共有116名有孩子的PLWHA参加了调查,其中男性54人(46.60%),女性62人(53.40%);近一半的人没有上过学,女性的受教育程度比男性低;自报个人年收入超过2 000元的只有3成,女性个人收入较男性低。调查对象在总体感觉、健康满意度、生理生活质量、心理生活质量、社会生活质量和环境生活质量等6个方面的平均得分分别是:2.44、2.85、20.13、15.16、9.84和21.20分,经转换后分别是35.99、46.34、46.89、38.18、57.00和41.22分。4项领域合计为183.33分。不同人口学因素影响生活质量的不同领域,但未见一个因素影响生活质量的多个领域,也未见多个因素影响一个领域。结论在安徽省农村地区,有孩子的艾滋病病毒感染者/艾滋病病人的生活质量受到严重影响,亟需改善他们的生活质量。
Objective To study the quality of life of people living with HIV / AIDS in rural areas of Anhui Province (PLWHA) and provide a basis for controlling the HIV / AIDS epidemic. Methods A cluster sampling method was used to collect 2 HIV / AIDS-endemic villages in a county in Fuyang City of Anhui Province. Adult PL-WHA was recruited from 6 to 18-year-old children. Semi-structured questionnaires and face-to-face interviews were conducted to investigate. Results A total of 116 PLWHA with children participated in the survey, including 54 males (46.60%) and 62 females (53.40%); nearly half of them did not attend school and women were less educated than men; self-reported individuals Only 30% of the annual income exceeds 2,000 yuan, and the personal income of women is lower than that of men. The average scores of the survey participants in six aspects of overall feeling, health satisfaction, quality of life, quality of psychological life, quality of social life and environmental quality of life were 2.44, 2.85, 20.13, 15.16, 9.84 and 21.20 respectively, After respectively 35.99,46.34,46.89,38.18,57.00 and 41.22 points. The four fields together amount to 183.33 points. Different demographic factors affect different areas of quality of life, but there is no single factor that affects multiple areas of quality of life, and no single factor affects more than one area. Conclusion In rural Anhui Province, the quality of life of people living with HIV / AIDS who have children is severely affected and the quality of life is urgently needed to improve.