论文部分内容阅读
目的探讨孤独症儿童的家庭环境以及父母生存质量现况,为改善其家庭环境提供依据。方法采用家庭环境量表中文版(FES-CV),对47例孤独症患儿和47例正常儿童进行家庭环境的病例对照研究,主要评价家庭环境中的亲密度、情感表达、矛盾性、知识性、娱乐性5个因子。采用WHO生存质量简表(WHOQOL-BREF),进行父母生存质量调查。内容包括生理领域、心理领域、社会关系领域、环境领域4个方面。结果孤独症儿童家庭环境的亲密度、知识性、娱乐性3个因子得分均明显低于正常儿童家庭,而矛盾性因子得分高于正常儿童家庭。孤独症儿童父母的生存质量在生理、心理、社会关系、环境4个领域中都明显低于正常组父母。结论孤独症儿童的家庭环境、父母生存质量受到了明显的影响,应进一步完善孤独症康复服务体系,为患儿及其家庭成员提供更多的支持和帮助。
Objective To explore the family environment of autistic children and the status quo of their parents’ quality of life, and provide the basis for improving their family environment. Methods FES-CV was used to study the family environment in 47 autistic children and 47 normal children. The family environment was mainly used to evaluate the intimacy, emotional expression, contradiction and knowledge Sexual, entertaining 5 factors. WHO quality of life table (WHOQOL-BREF), the quality of life of parents survey. Content includes the physical field, the psychological field, the social relations field, the environmental field 4 aspects. Results The scores of intimacy, knowledge and entertainment of family environment of children with autism were significantly lower than those of normal children, while the scores of contradictory factors were higher than those of normal children. The quality of life of parents of children with autism was significantly lower than that of the normal group in the four fields of physiology, psychology, social relations and environment. Conclusion Autistic children’s family environment and their parents’ quality of life have been significantly affected. Autism rehabilitation service system should be further improved to provide more support and help to children and their family members.