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目的了解豫北农村社区食管癌患者的社会支持状况和生存质量(QOL),探讨通过社区护理提高患者社会支持程度改善生存质量的措施。方法便利选取位于河南豫北农村社区803例食管癌患者进行问卷调查或个人访谈。问卷由患者一般情况调查表、欧洲癌症研究和治疗组织研制的生存质量核心问卷第三版中文版(ETROCQLQ-C30V3.0)和食管癌专项量表(QLQ-OES18)以及社会支持评定量表(SSRS)组成,社会支持总分<31为社会支持差,31~41为社会支持良好,>41分为社会支持充分。结果社区食管癌患者社会支持总分为(36.40±7.49)分,高于常模([34.56±3.73)分],具有统计学意义(P<0.05)。不同社会支持程度的三组患者的总体健康水平、食欲丧失和味觉障碍等3个维度得分差别具有统计学意义(P<0.05)。结论社区食管癌患者的总体社会支持状况较好,发病时间<2年、人均月收入≤1000元者QOL与社会支持程度的关系更为密切。
Objective To understand the social support status and quality of life (QOL) of esophageal cancer patients in rural community of Yubei and to explore the measures to improve the quality of life by improving the social support of patients through community nursing. Methods Convenient selection of 803 cases of esophageal cancer patients in rural communities in northern Henan for questionnaires or personal interviews. The questionnaire was composed of the questionnaire on general patient status, ETROCQLQ-C30V3.0 and QLQ-OES18, the core questionnaire of quality of life developed by the European Organization for Research and Treatment of Cancer, and the Social Support Rating Scale SSRS). The total score of social support <31 was poor for social support, 31 ~ 41 for good social support, and> 41 for full social support. Results The total social support score of esophageal cancer patients in community was (36.40 ± 7.49) points higher than that of normal (34.56 ± 3.73) points, with statistical significance (P <0.05). Three groups of patients with different levels of social support had statistically significant differences in overall health status, loss of appetite and taste disorders among the three dimensions (P <0.05). Conclusion The overall social support status of patients with esophageal cancer in community is better, the onset time is less than 2 years, and the monthly per capita income is less than 1000. QOL is more closely related to the degree of social support.