ALS看护者的负担与患者“成为负担”的感受

• 作 者: ChiòA. Gauthier A. Calvo A. 李一明
• 机 构: Department of Neuroscience Via Cherasco 15 10126 Torino,Italy,Dr.,
• 出 处: 世界核心医学期刊文摘(神经病学分册)
• 发表日期: 2005年09期
• 关键词: 看护者 调查表 自我感觉 慢性疾病 生活质量 对中 ALS

The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients’disability. ALS patients have a good objective perception of their impact on caregivers.

The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients’ disability. ALS patients have a good objective perception of their impact on caregivers.